Family Stories

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The Rogers Family Story

Chandler Rogers’ medical journey started eight years ago, when he was diagnosed with an intimidating condition in both name and symptoms: Nephrotic Syndrome due to Focal Segmental Glomerulosclerosis (FSGS). Chandler’s kidneys were becoming damaged and scarred, eventually leading him to go into kidney failure. At sixteen years old, it was evident that Chandler needed a […]

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The Kaloroumakis Family Story

Madison Kaloroumakis arrived 10 weeks early to the world, weighing only 2 lbs 6 oz. Her diagnosis of IUGR (Intrauterine Growth Restriction) meant that she faced the first weeks of her life on oxygen, attached to machines, and hooked up to IVs. And she was far from home. The Kaloroumakis family, from Seaford, Delaware, had […]

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The Rateep Family Story

Four-year-old Olivia Rateep was diagnosed with Focal Segmental Glomerulosclerosis (FSGS) when she was two years old. This rare disease affects her kidneys, producing scarring and organ function problems. The Rateep family lives in California, where they tried every treatment available for Olivia before coming to Delaware for a 9-week clinical trial for a new treatment […]


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