When Avery Watts was 11 years old, she had a heart attack. At age 12, she has already had two open-heart surgeries. She and her family are preparing for her third, scheduled for this November. When she was only six years old, Avery was diagnosed with a disease called Homozygous Familial Hypercholesterolemia. This disease prohibits […]
“Kevin and I met in 2009, got married in 2011, and we tried for a family for 7 years. Finally, in January of 2019, we were blessed to announce that we were expecting. Then, amidst the joy of the good news, we were suddenly hit with a series of heartbreaks. A week later, we lost […]
Chandler Rogers’ medical journey started eight years ago, when he was diagnosed with an intimidating condition in both name and symptoms: Nephrotic Syndrome due to Focal Segmental Glomerulosclerosis (FSGS). Chandler’s kidneys were becoming damaged and scarred, eventually leading him to go into kidney failure. At sixteen years old, it was evident that Chandler needed a […]
Madison Kaloroumakis arrived 10 weeks early to the world, weighing only 2 lbs 6 oz. Her diagnosis of IUGR (Intrauterine Growth Restriction) meant that she faced the first weeks of her life on oxygen, attached to machines, and hooked up to IVs. And she was far from home. The Kaloroumakis family, from Seaford, Delaware, had […]
Four-year-old Olivia Rateep was diagnosed with Focal Segmental Glomerulosclerosis (FSGS) when she was two years old. This rare disease affects her kidneys, producing scarring and organ function problems. The Rateep family lives in California, where they tried every treatment available for Olivia before coming to Delaware for a 9-week clinical trial for a new treatment […]
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