Rebeka’s Mom Donated Part of Her Liver to Save Her Daughter’s Life Rebeka has Biliary Artesia, a rare and life threatening disease of the liver. When she was 7 months old, Rebeka, her parents left home in Jamaica to receive medical treatment in Wilmington, Delaware. When her family arrived, Rebeka was hospitalized for months while waiting for […]
Malachi and His Family Stayed at the Ronald McDonald House this Summer Since he was diagnosed with dwarfism nine years ago, Malachi and his family family have been coming to Nemours/A. I. duPont Hospital for Children. Only recently when he needed surgery did they start to stay at the Ronald McDonald House of Delaware. During […]
Lilly was born in Uganda and taken to a foster program run by her now-adoptive mother, Emily. After knowing Lilly for only a few days, Emily decided that she wanted to adopt her. In Uganda, adoptive parents must foster their child for three years in the country. One year into this process, Lilly was diagnosed with leukemia. […]
Ian’s Journey Ian has a rare musculoskeletal disorder. His journey has been a long one, with more than 20 surgeries and rigorous physical therapy. In order to be closer to Ian’s medical team in Wilmington, DE, his family made the decision to move from Texas to Maryland. During visits to the hospital, he and his family have […]
Levi is one of just 21 people worldwide with a rare form of dwarfism. Because his condition is so rare, he visits to different doctors around the country for treatment.”¬ Biggest Flight Ever Over the summer, Levi flew from his home in Mississippi to Wilmington, Delaware for an orthopedic evaluation. (This was the 100,000th flight arranged […]
Ryan’s Family Knew He Was a Fighter “He’ll try anything. He gets mad if you try to help.” That’s mom’s way of describing Ryan, watching as he slides down the mini roller coaster in the playroom. Ryan is a lively 3.5 year old who has achondroplasia. After almost losing Ryan to a common cold at […]
Pablo’s family traveled from Chile and found a new home. The Lasso Degand family believes the Ronald McDonald House is much more than just a place to stay. Pablo was born with Morquio Syndrome, a rare genetic disorder. As he grew, walking became increasingly more difficult as his deformities progressed rapidly. Pablo’s family began […]
What child looks like a princess wearing halo traction as though it was her crown? And what five year old tells the nurse who stuck her with an IV, to “walk the plank” for causing her pain? Precocious, sweet Zoe does. Having traveled across the country so Zoe could undergo a life-altering spinal surgery at […]
Since the Fennelly’s first stay in October of 2014, they’ve unpacked their bags at their “home away from home” 6 times, totaling 61 nights. Time after time, they pack their car and make the trek from Virginia to Delaware so Sean can receive orthopedic treatment at Nemours/Alfred I. duPont Hospital for Children.
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